cancer.duke.edu/btc  
The Preston Robert Tisch Brain Tumor Center at Duke

Community and National Resources | Fun / Looking, Feeling Good / Connecting Services

caringbridge.org

  • CaringBridge is a non-profit organization that offers free web pages for patients and their families. Begun after the outpouring of praise for a similar page that was created for a premature baby, CaringBridge allows patients and their families to create journals to be shared with friends, families, and acquaintances about the status and life of a patient, and bring together a "community of care." Their mission perhaps says it best as they say, "CaringBridge brings together a global community of care powered by the love of family and friends in an easy, accessible and private way."

    Patients and their families can post updates and photos while visitors to the site can sign the guestbook. Some use it to tell people when to and when not to visit, what they need, but mostly it is a resource that allows a family to keep all of their well-wishers informed in an easy and private manner.

theStatus.com

  • When someone is ill or hospitalized, keeping friends and family abreast of the nature of their care and current condition can be taxing. theStatus.com is a free place to create a private, secure and confidential website for communicating how a patient is doing, notifying loved ones if they are accepting phone calls or visitors, and posting pictures. It's a place where guests can leave messages, sign a Guest Book or ask questions without burdening the patient or primary caregivers. It's a kind of community journal for patients and their support group. Patients and their families can easily create their own pages and update the pages as often as they wish from anywhere using a web browser.

Hair Club for Kids
(212) 462-1400, ext. 3085
345 Hudson St., 12th Floor
New York, NY 10016

  • This club provides synthetic hair wigs to children aged 6 - 18 who are suffering hair loss from cancer. There is no charge; donations are optional. The patient must be able to travel to the nearest Hair Club to be measured. A physician consent form is required.

Just In Time
(212) 246-8777
PO Box 27693
Philadelphia, PA 19918

  • This program offers several styles of reversible all-cotton headwear for juniors (ages 7 to 12).

Songs of Love
(718) 997-8482
Website: http://www.songsoflove.org/

  • This non-profit organization is dedicated to helping children in crisis by writing an original song personalized to the needs and interests of the child or teen, at no charge.

Very Special Arts
(800) 933-8721
1300 Connecticut Avenue, NW, #700
Washington, DC 20036
Website: http://www.vsarts.org/

  • This is a nonprofit organization that provides art activities for young people with disabilities (including cancer). They can also refer you to affiliates, in every US state and 85 countries, that offer local arts activities. Every year, the national office sponsors two competitions:
    Young Soloists Program: Two musicians (singers and instrumentalists) are selected to perform at the Kennedy Center in Washington, DC. This program is for children ages 12 to 18.
    Play-Writing Competition: People ages 12 to 25 are invited to submit original plays with a theme of disability.

The BeauBeauTM
(941) 921-4389 or (941) 361-2408
Website: http://www.4women.com/

  • "Beautiful Scarves for Beautiful Heads." Unique scarves, specifically designed for women and children with medical hair loss.

Sheer Bliss - The Triangle's Premier Day Spa
(
919) 403-8159
1843 Martin Luther King Parkway
Durham, NC  27707
Website: http://www.sheer-blissdayspa.com/

  • Sheer Bliss Makes a Difference's mission is to provide superior custom-fitted wigs to people who are losing their hair due to chemotherapy treatment or a medical condition. They offer confidential, compassionate and conscientious services in a serene environment, as well as aspire to “make a difference” in the lives of every person who walks through our door.

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