Brain Tumor Organizations

Community and National Resources | Brain Tumor Organizations

American Brain Tumor Association (ABTA)
(800) 886-2282 or (847) 827-9910
2720 River Road, Suite 146
Des Plaines, IL 60018-4110
Website: http://www.abta.org/

  • For in-depth written information about a particular diagnosis, this is the place to call. ABTA publishes and distributes single free copies of good, reliable, readable information specifically written for patients and families. Their 25th Anniversary Edition of A Primer of Brain Tumors is a must have for all patients and families. They sponsor national and regional patient Town Hall Meetings, and sponsor symposiums for patients, families, and healthcare professionals. They also focus a lot on clinical trials: what they are, how to find them, things to keep in mind when selecting one. Ask for their newsletter, MessageLine and their pen-pal program called Connections, which matches families across the country going through treatments for brain tumors.

National Brain Tumor Society (NBTS)
Website:  http://www.braintumor.org/home/
National Brain Tumor Society (NBTS) is a leader in the brain tumor community, bringing together the best of research and patient services to be a comprehensive resource for patients, families, caregivers, researchers, and medical professionals.

East Coast Office
Phone #: (617) 924-9997
Fax #: (617) 924-9998
124 Watertown Street, Suite 2D
Watertown, MA  02472

West Coast Office
Phone #: (415) 834-9970
Fax #: (415) 834-9980
22 Battery Street, suite 612
San Francisco, CA 94111

Patient Services:  (800) 934-2873
Toll Free:  (800) 770-8287

 

Brain Tumor Foundation for Children
(404) 252-4107
Fax: (404) 252-4108
6065 Roswell Road NE, Suite 505
Atlanta, GA 30328
Email: info@braintumorkids.org
Website: http://www.braintumorkids.org/

  • This organization provides information/education and social and emotional support for families, in addition to funding research projects.

Children’s Brain Tumor Foundation
(212) 448-9494
Toll free patient support line: (866) 228-HOPE (4673)
Fax: (212) 448-1022
274 Madison Avenue, Suite 1301
New York, NY 10016
Email: info@cbtf.org
Website: http://www.cbtf.org/

  • The Children's Brain Tumor Foundation (CBTF) raises funds for basic scientific research into the causes of, and improved treatments for, pediatric brain and spinal cord tumors. CBTF also provides support to patients and their families through the Parent-to-Parent Network, educational teleconferences, telephone support groups, etc. A newsletter, The Challenge, is published twice a year and CBTF's book, A Resource Guide for Parents of Children with Brain and Spinal Cord Tumors, is available at no cost to families in English and Spanish.

Pediatric Brain Tumor Foundation
(800) 253-6530 or (704) 665-6891
315 Ridgefield Court
Asheville, NC 28806
Website: http://www.ride4kids.org/

  • This foundation seeks to support medical laboratory research and increase public awareness about childhood brain tumors. They conduct numerous Ride for Kids events - a motorcyclist fund raising program - all across America.

The Preuss Foundation
(619) 454-0200
2223 Avenida de la Playa, Suite 220
LaJolla, CA 92037
Email: fari@preuss.org

  • The primary mission of this organization is to increase communication among research scientists throughout the world whose fields of study impact the research or treatment of brain tumors. They fund research projects at research institutes in the United States and Europe.

Brain Tumor Foundation of Canada
(800) 265-5106 or (519) 642-7755
111 Waterloo Street, Suite 201
London, Ontario N6B 2M4
Canada Website: http://www.braintumour.ca/

  • This organization raises and grants funds for research into causes and the cure of brain tumors. They offer publications, as well as tapes and videos on brain tumors.

The Guardian Brain Foundation
Website:  http://www.guardianbrain.com/

  • For the quality of life and the advancement of brain research for brain tumors and injuries. Our mission is to help advance neuroscience research and provide support services and to improve quality of life for adults and children diagnosed with injuries and tumors of the brain.

    We are a group of people who volunteer our time and believe in the quality of life, bringing awareness and sharing compassion so we can make a difference in the lives of adults and children with brain injuries and tumors.

Southeastern Brain Tumor Foundation (SBTF)
(404) 843-3700
P.O. Box 422471
Atlanta, GA 30342
Email: sbtfatlanta@aol.com
Website: http://www.sbtf.org/

  • SBTF is a foundation of hope. The organization raises funds and awards grants for brain tumor research. The major fundraiser and public awareness event is the annual Race for Research which honors brain tumor survivors and those who have gone on. 
  • In addition, SBTF offers information, education, and support services to patients, survivors, and families. The organization hosts a brain tumor support group which meets monthly to provide survivors and their families a way of sharing information and experiences in a warm and caring environment.

Central Brain Tumor Registry of the United States
(312) 579-0021

Childhood Brain Tumor Foundation
Toll free (877) 217-4166

http://www.curesearch.org/
Sponsored by children's Oncology Group (COG) and National Childhood Cancer Foundation

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This article comes from The Preston Robert Tisch Brain Tumor Center at Duke   http://www.cancer.duke.edu/btc
The URL for this story is:   http://www.cancer.duke.edu/btc/modules/patientsupport12/index.php?id=12