The Preston Robert Tisch Brain Tumor Center at Duke

Community and National Resources | Cancer Organizations

American Cancer Society
(800) 227-2345 or (404) 320-3333
1599 Clifton Road, NE
Atlanta, GA 30329

  • The American Cancer Society provides general information on treatment and may provide financial support. The National Headquarters can refer you to the chapter nearest your home community.

Cancer Care
(800) 813-4673 or (212) 302-2400
1180 Avenue of the Americas
New York, New York 10036

  • Cancer Care, Inc. is a social work organization that provides, free of charge, assistance to people with any type of cancer, at any stage of illness. With more than 45 professional oncology social workers on staff, Cancer Care offers counseling and emotional support via private consultation, in support groups, and over the phone. They provide written information about cancer, treatments, and topics related to coping; referrals to other support services; educational seminars and conferences (including teleconferences); and financial assistance on a restricted basis to residents of New York, New Jersey, and Connecticut.

Candlelighter’s Childhood Cancer Foundation
(800) 366-2223 or (301) 657-8401
7910 Woodmont Ave., Suite 460
Bethesda, MD 20814-3015

  • This is an international organization that provides support, education, and advocacy programs for families of children with cancer, survivors of childhood cancer, and the medical and psychosocial professionals who treat them. Whether you need to talk or to look for information, the staff is so nice. Supported by the American Cancer Society, they offer free of charge a quarterly newsletter, a youth newsletter, and printouts about various treatments and cancer. They also give parents an opportunity to connect through their newsletter. In addition to the newsletter, you may want to ask for the book, Educating the Child With Cancer, and for the Bibliography and Resource Guide. The guide has hundreds of resources, including medical facts about cancer, legal and ethical issues, coping skills, and the effects on families.

Cornucopia House
(919) 967-8842
Forum One Building
1777 Fordham Blvd. Ste. 104,
Chapel Hill, NC 27514

  • Cornucopia House provides opportunities in a supportive atmosphere for people with cancer, their families, and friends to connect, share, build resources with one another and learn about actively participating in their cancer treatment/recovery process. They offer support groups, classes, and educational forums as part of their "Getting Your Bearings" Support and Education Track as well as their "Tools for Living" Stress and Cancer Track that focuses on stress reduction and relaxation.

Coping Magazine
(615) 790-2400

  • This magazine provides insight and knowledge about the disease and encourages the development of coping skills and strategies.

Food and Drug Administration, Office of Special Health Issues, Cancer Liaison Program
(301) 827-4460
5600 Fishers Lane, Room 9-49, HF-12
Rockville, MD 20857

  • The staff who work in this program are able to talk to you about issues confronting patients dealing with a life-threatening illness and about cancer information resources within FDA and other federal agencies, including the National Cancer Institute and the private sector. The staff works closely with cancer patients and cancer patient advocacy programs. The staff here listens to the concerns of cancer patients and their families and can help provide you with information about the FDA drug approval process, cancer clinical trials, and access to investigational therapies when entry into an existing clinical trial is not possible.

NIH/National Cancer Institute (NCI)
(800) 422-6237
Cancer Information Service (CIS)
Building 31, Room 10A24
9000 Rockville Pike
Bethesda, MD 20892

  • The National Cancer Institute (NCI) sponsors a toll-free Cancer Information Service (CSI), open 7 days a week. They are very helpful and offer information about cancer and cancer related resources to cancer patients and their families as well as to the general public. They will be as specific as possible when sending you information. They will ask what type and grade the tumor is and send you the resources pertaining to your individual circumstance. CIS does not diagnose cancer or recommend treatment. They do provide support, understanding and quick access to the latest information on cancer.

    NCI also has a large variety of free booklets available. To get these booklets, you may: (1) ask a member of your Duke Neuro-Oncology Team for them; (2) call or write to NCI for a listing of their publications or to order one of their publications; or (3) visit the Patient and Family Resource Library at Duke’s Comprehensive Cancer Center - you’ll find many of these publications available to you there.

National Children’s Cancer Society
(800) 532-6459
1015 Locust, Suite 600
St. Louis, MO 63101

  • This organization provides financial assistance, advocacy, and education for children with cancer and their families. For more information or for an application, please speak with your social worker or call the number above.

National Coalition for Cancer Survivorship (NCCS)
(877) 622-7937
1010 Wayne Avenue, Suite 505
Silver Springs, MD 20910

  • NCCS is a nonprofit organization which addresses the needs and interests of people with cancer, their families, healthcare professionals, and cancer organizations. Founded by and for individuals with all types of cancer, NCCS provides information and referral resources on the physiological, psychological, economic, and social impacts of cancer. They offer a resource network linking cancer survivors nationwide to support resources in their communities. They assist survivors with insurance and employment problems. They advocate nationally for survivorship issues and provide public education and information alerts. Ask for their newsletter, The Networker, their workbook, You Have The Right to be Hopeful, and information on their book, A Cancer Survivors Almanac: Charting Your Journey (also available at Duke’s Patient and Family Library in the Comprehensive Cancer Center).

Cancer Information Service of Canada
(800) 263-6750 (in Ontario), (905) 387-1153 (outside Ontario)

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